MS Base Registry

The MSBase Registry is an international online registry for Multiple Sclerosis researchers, operated through The Royal Melbourne Hospital.

The MSBase Registry is a free tool for electronic data collection, substudy management and online research investigator collaboration. The platform provides a fully customisable substudy functionality and electronic case report form to allow for the collection of data for studies of MS regionally, nationally and globally. The World Wide Web is used for communication and data sharing whilst assuring investigators retain ownership of anonymised data.

This tool for clinical outcomes research can be used by:

 Centres wishing to conduct studies of MS
  Centres wishing to contribute to the dissemination of data in MS
  Organisations conducting studies of MS

As of July 2006, the registry has over 4200 patient records databased from anonymised electronic medical records in MS clinics in 13 countries. Close to 70 research centres are involved in the project.

The registry is operated by the MSBase Foundation at The Royal Melbourne Hospital, located in 4 North in the MS Department.

Directors  Dr Helmut Butzkueven (AUS)  Prof Damien Jolley (AUS)  Prof Joab Chapman (Israel)  Prof Thomas Leist (USA) Administrator  Michelle Hoffmann MSBASIS Study Manager  Mary Tanner

Contact details MSBase Foundation Dept of Neurology The Royal Melbourne Hospital Grattan Street Parkville VIC 3050 AUSTRALIA Tel/Fax: +61 3 9342 8070 Email:    msbase@mh.org.au MS Base Registry website www.msbase.org

Figure 1: Graphical view of MSBase structure