MS Base Registry

The MSBase Registry is an international online registry for Multiple Sclerosis researchers, operated through The Royal Melbourne Hospital.

The MSBase Registry is a free tool for electronic data collection, substudy management and online research investigator collaboration. The platform provides a fully customisable substudy functionality and electronic case report form to allow for the collection of data for studies of MS regionally, nationally and globally. The World Wide Web is used for communication and data sharing whilst assuring investigators retain ownership of anonymised data.

This tool for clinical outcomes research can be used by:

Centres wishing to conduct studies of MS
Centres wishing to contribute to the dissemination of data in MS
Organisations conducting studies of MS

As at 1 January 2012, the registry has 18,888 anonymised patient records accumulated from MS clinics in 28 countries. The registry currently hosts 16 sub-studies.

The registry is operated by the MSBase Foundation at The Royal Melbourne Hospital located in the Melbourne Brain Centre.

Directors Dr Helmut Butzkueven (AUS) Prof Damien Jolley (AUS) Prof Joab Chapman (Israel) Prof Thomas Leist (USA) Samir Mechati (Switzerland) Administration Michelle Rutherford, Director – Business Operations Mary Tanner – Projects Co-ordinator MSBASIS Study Manager Mary Tanner

Scientific Leadership Group R. Alroughani MD, Kuwait, H. Butzkueven MBBS PhD, Melbourne, Australia C. Boz MD, Trabzon, Turkey J. Chapman MD, PhD Tel Aviv, Israel E. Cristiano MD, Buenos Aires, Argentina F. Grand'Maison MD, Montreal, Canada O. Gray MD, Belfast, Northern Ireland G. Izquierdo MD, Sevilla, Spain D. Jolley MSc, Melbourne, Australia L. Kappos MD, Basel, Switzerland T. Leist MD, Philadelphia, USA T. Petersen, MD, Århus, Denmark D. Pöhlau MD, Asbach, Germany M. Trojano, MD, Bari, Italy F. Verheul MD, Gouda, Netherlands

Contact details MSBase Foundation Dept of Neurology Melbourne Brain Centre The Royal Melbourne Hospital Grattan Street Parkville VIC 3050 AUSTRALIA Tel/Fax: +61 3 9342 8070 Email: msbase@mh.org.au MS Base Registry website http://www.msbase.org/

Figure 1: Graphical view of MSBase structure

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